(410 ILCS 460/131-25)
    Sec. 131-25. Study.
    (a) Before July 1, 2022, and on a biennial basis thereafter, the Department, with the assistance of:
        (1) the Center for Minority Health Services;
        (2) health care providers that treat individuals with
    
sickle cell disease;
        (3) individuals diagnosed with sickle cell disease;
        (4) representatives of community-based organizations
    
that serve individuals with sickle cell disease; and
        (5) data collected via newborn screening for sickle
    
cell disease;
shall perform a study to determine the prevalence, impact, and needs of individuals with sickle cell disease and the sickle cell trait in Illinois.
    (b) The study must include the following:
        (1) The prevalence, by geographic location, of
    
individuals diagnosed with sickle cell disease in Illinois.
        (2) The prevalence, by geographic location, of
    
individuals diagnosed as sickle cell trait carriers in Illinois.
        (3) The availability and affordability of screening
    
services in Illinois for the sickle cell trait.
        (4) The location and capacity of the following for
    
the treatment of sickle cell disease and sickle cell trait carriers:
            (A) Treatment centers.
            (B) Clinics.
            (C) Community-based social service organizations.
            (D) Medical specialists.
        (5) The unmet medical, psychological, and social
    
needs encountered by individuals in Illinois with sickle cell disease.
        (6) The underserved areas of Illinois for the
    
treatment of sickle cell disease.
        (7) Recommendations for actions to address any
    
shortcomings in the State identified under this Section.
    (c) The Department shall submit a report on the study performed under this Section to the General Assembly.
(Source: P.A. 102-4, eff. 4-27-21.)