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90_HB0230 New Act Creates the Healthy Start Program Act. Establishes a 3-year demonstration project, administered by DCFS, to prevent child abuse and neglect by providing various services to families meeting specified criteria. Establishes the Healthy Start Program Steering Committee to plan and implement the Healthy Start Program. Effective immediately. LRB9001402DJmb LRB9001402DJmb 1 AN ACT to create a Healthy Start Program. 2 Be it enacted by the People of the State of Illinois, 3 represented in the General Assembly: 4 Section 1. Short title. This Act may be cited as the 5 Healthy Start Program Act. 6 Section 5. Purpose. The legislature finds that 7 substance abuse, mental illness, and poverty are frequently 8 linked to child abuse and neglect. 9 In Illinois, in 1992, at least 75 children died as a 10 result of child abuse and neglect. 11 The U.S. Advisory Board on Child Abuse and Neglect 12 recommends that the first, most important step in responding 13 to the child abuse crisis is to focus on preventing it before 14 it occurs by implementing a universal, voluntary, neonatal 15 home visiting service for all new parents. 16 The Healthy Start Program, developed in the state of 17 Hawaii, has pilot-tested, evaluated, and put into place a 18 model home visitor program that currently reaches over 50% of 19 their at-risk new parents. Hawaii reports child physical 20 abuse or neglect in fewer than 1% of the families served by 21 the Healthy Start Program. The Healthy Start Program has 22 also been adopted in other states. 23 This demonstration project shall be phased in over a 24 period of 3 years. 25 Healthy Start Program services are to be provided by 26 hospitals participating in the project. Participating 27 hospitals will screen all new parents to identify those most 28 in need of home support and education. Families served by 29 the program will begin receiving home services once a week 30 from trained professionals. These home visits will be 31 reduced to one per month as family stability improves. -2- LRB9001402DJmb 1 Services may continue until the child enters school at age 5. 2 In addition to home visits, caseworkers will provide 3 access to community-based services including housing, 4 substance abuse treatment, and nutrition programs. 5 Caseworkers also will ensure that families are linked to a 6 health-care provider to ensure that their children are 7 immunized, are screened for developmental delays, and receive 8 other continuing health care. 9 The purpose of this Act is to establish an Illinois 10 Healthy Start Program demonstration project with services 11 provided in the largest county hospital located in each 12 service region of the Illinois Department of Children and 13 Family Services to demonstrate the effectiveness of this 14 community-based parent screening and service program over a 15 period of 3 years. 16 Section 10. Definitions. In this Act: 17 "Department" means the Department of Children and Family 18 Services. 19 "Hospital" means a hospital designated by the Department 20 located in the largest metropolitan area within each service 21 region of the Department, with the exception of the Cook 22 County service region, in which the Cook County Hospital 23 shall be the designated hospital. 24 "Parent" means a new parent who is deemed to be at high 25 risk for child abuse and neglect based upon a list of risk 26 indicators developed by the Hawaii Family Stress Center. 27 "Project" means the Illinois Healthy Start Program. 28 Section 15. Project. 29 (a) There is established, subject to available 30 appropriations, a 3-year demonstration project, known as the 31 Illinois Healthy Start Program. The Department shall be 32 responsible for the establishment of the project. The -3- LRB9001402DJmb 1 Department shall work with the Department of Public Health 2 and the Department of Human Services (as the successor agency 3 to the Department of Alcoholism and Substance Abuse), along 4 with the largest county hospital located in each service 5 region of the Department of Children and Family Services in 6 the planning and implementation of the project. 7 (b) To coordinate the planning and implementation of the 8 project, the Illinois Healthy Start Program Steering 9 Committee shall be established as provided in Section 20 of 10 this Act. 11 (c) The project shall begin with a comprehensive needs 12 assessment to identify the size of the target population, the 13 capacity of current services to address the needs of this 14 population, and the relevant actors and advocates needed to 15 create a fully operational and funded project. 16 (d) In order to prevent child abuse and neglect, the 17 project shall target "early identified" families at high risk 18 for child abuse and neglect based upon a list of risk 19 indicators developed by the Hawaii Family Stress Center. 20 Risk indicators include marital status, partner employment 21 status, inadequate income, unstable housing, no telephone, 22 education under 12 years, inadequate emergency contacts, 23 history of substance abuse, late or no prenatal care, history 24 of abortions, history of psychiatric care, abortion 25 unsuccessfully sought or attempted, relinquishment of a child 26 for adoption, marital or family problems, and history of or 27 current depression. Project services shall be provided by 28 hospitals participating in the project. Participating 29 hospitals shall screen all new parents to identify those 30 most in need of home support and education. Families served 31 by the project shall begin receiving home services once each 32 week from trained professionals. These home visits shall 33 reduced to one each month as family stability improves. 34 Services may continue until the child enters school at age 5. -4- LRB9001402DJmb 1 Service criteria shall include the following: 2 (1) Initiation of services prenatally or at birth. 3 (2) Universal intake service for all new parents 4 initially from a defined geographic target area (for 5 example, the area served by a participating hospital). 6 (3) Universal needs assessment using a standardized 7 protocol to systematically identify those new parents 8 most in need of services due to the presence of various 9 factors associated with increased risk for child 10 maltreatment and other poor childhood outcomes. 11 (4) Offering of all high risk services in a 12 positive, voluntary way. 13 (5) Home visitation as the core service offered. 14 (6) Creative outreach (for example, persistent, 15 positive outreach for at least 3 months) to build client 16 trust in accepting services. 17 (7) Intense offering of services (for example, at 18 least once each week) with well-defined criteria for 19 increasing or decreasing the intensity of services. 20 (8) Offering of services over the long term (for 21 example, 3 to 5 years). 22 (9) Provision of services that are family-centered, 23 addressing the needs of the child within the context of 24 the family and recognizing that the adults in the family 25 are the primary decision makers. 26 (10) Provision of services that focus on supporting 27 the parent as well as on supporting parent-child 28 interaction and child development. 29 (11) Provision of services that include a focus on 30 child health and linkages to a health care system. 31 (12) Provision of services that include a focus on 32 school readiness, either directly or by offering linkages 33 to other school readiness services. 34 (13) Tailoring of service plans to the needs of the -5- LRB9001402DJmb 1 individual family. 2 (14) Selection of staff who are culturally 3 competent, who like the materials and approaches used, 4 and who reflect the cultural, linguistic, racial, and 5 ethnic diversity of the population served. 6 (15) Selection of early identification and home 7 visitation workers because of their personal 8 characteristics. 9 (16) Completion by all workers of an intensive, 10 standardized initial training program and periodic 11 in-service training. 12 (17) Receipt by all workers of ongoing, intense 13 professional supervision to assure quality of services 14 (for example, 2 hours of supervision weekly for home 15 visitors; 5 or 6 home visitors per supervisor). 16 (18) Limitation of worker caseloads (15 families in 17 the first year of the project, 20 families in the second 18 year). 19 (19) Overall focus of service delivery on 20 integration with other services in the area. 21 To the extent possible, the project shall utilize 22 existing home visiting services and other support programs 23 already operating at or in conjunction with the designated 24 project hospital located in each service region of the 25 Department. 26 Section 20. Illinois Healthy Start Program Steering 27 Committee. 28 (a) There is established the Illinois Healthy Start 29 Program Steering Committee for the purpose of planning and 30 implementing the establishment and development of the 31 project. The Committee shall be appointed by the Governor 32 and shall consist of representatives from the public and 33 private sectors of the community including the following: one -6- LRB9001402DJmb 1 representative from each of the Illinois Departments of 2 Children and Family Services, Public Health, and Human 3 Services (as the successor agency to the Department of 4 Alcoholism and Substance Abuse) and each of the participating 5 hospitals; a person who has earned a doctor of social work 6 degree and who has at least 5 years of direct work experience 7 in child abuse or neglect; a person who has earned a master 8 of public health degree and who has at least 5 years of 9 direct work experience with maternal and child health 10 programs; a person who has earned a doctor of education 11 degree and who has at least 5 years of direct work experience 12 with pre-school aged children; and a pediatrician who has at 13 least 5 years of direct work experience in emergency room or 14 child protective services. 15 (b) The Committee shall confer with the Director of the 16 Department, who may do all of the following: 17 (1) Enter into agreements with other State 18 departments and agencies and with counties. 19 (2) Enter into assistance agreements with private 20 persons, groups, institutions, or corporations. 21 (3) Purchase services required or appropriate under 22 this Act from any private persons, groups, institutions, 23 or corporations. 24 (4) Allocate and spend any resources available for 25 the purposes of this Act. 26 (5) Enter into inter-agency agreements. All 27 agreements entered into for the accomplishment of the 28 purposes of this Act shall place a duty upon each 29 affected agency to cooperate fully with the project in 30 making every effort to enter into the agreement. 31 (6) All things necessary to accomplish the purposes 32 and provisions of this Act. 33 (c) The Committee shall complete an evaluation that 34 includes, but is not limited to, descriptive data on client -7- LRB9001402DJmb 1 status, project utilization data, profiles of participants, 2 intervention plans, participant and community satisfaction 3 ratings, and a detailed accounting of how the project 4 established its goals, selected its staff, and developed the 5 project content and focus. 6 The evaluation of project services shall provide for the 7 following: 8 (1) A formal control or comparison group of clients 9 participating in the project. 10 (2) A wide range of outcome measures for the 11 following: 12 (A) Home visitor services for parents 13 (including consideration of: subsequent reports of 14 child abuse; use of formal and informal social 15 supports, particularly health care systems; 16 knowledge of parenting and child development; 17 attitudes toward and use of corporal punishment; 18 parental stress; quality of parent-child 19 interaction; subsequent pregnancies; and employment 20 or educational achievement rates). 21 (B) Home visitor services for children 22 (including consideration of infant mortality, 23 physical development, cognitive development, and 24 social functioning). 25 Project evaluations shall include multiple methods of 26 data collection as well as, to the possible, standardized 27 measures of outcomes such as the Child Abuse Potential 28 Inventory, the HOME Observation Measurement Environment 29 Scale, the Parenting Stress Index, the Adult Adolescent 30 Parenting Inventory, the Nursing Child Assessment Satellite 31 Training, the Michigan Screening Profile of Parenting, and 32 the Maternal Social Support Index. Quarterly service 33 evaluations should be made during the first year of the 34 child's life and every 6 months thereafter until evaluation -8- LRB9001402DJmb 1 concludes or the family terminates services. Post-project 2 interviews shall be obtained for all participating parents. 3 Section 25. Funding. The Department, before 4 establishing the project, shall seek funding from public and 5 private sources. Funding received from private foundations 6 or from other sources may be used by the Department to 7 establish the project. 8 Section 30. Reporting. The Department shall monitor and 9 evaluate the project and shall submit a status report on its 10 findings to the General Assembly on February 1 in 1998 and 11 1999 and a final report on its findings to the General 12 Assembly on February 1, 2000. The status and final reports 13 shall include, but not be limited to, the following: 14 (1) A descriptive summary of the operation of the 15 project, including the services provided and a copy of 16 the service plan developed at each participating 17 hospital, the number of recipients served by the project, 18 the outcome of services provided, the allocation of 19 funds, and staffing information. 20 (2) An assessment of the impact of the project on 21 each of the regions served by the project. 22 (3) The composition and role of the staff and 23 steering committee for the project. 24 (4) Recommendations regarding the continuance of 25 the project at each of the hospitals participating in the 26 project, and the inclusion of other sites in the project. 27 (5) Recommendations regarding funding allocations 28 to support the project. 29 (6) A project budget for the expenditures required 30 to continue or expand the project in intervals of 1, 2, 31 and 3 years. 32 (7) Proposals for legislation necessary to -9- LRB9001402DJmb 1 facilitate the continuation or expansion of the project 2 and to fully implement the project statewide within 5 3 years. 4 Section 99. Effective date. This Act takes effect upon 5 becoming law.