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90_HB1028 410 ILCS 405/3 from Ch. 111 1/2, par. 6953 410 ILCS 405/4 from Ch. 111 1/2, par. 6954 410 ILCS 405/7 from Ch. 111 1/2, par. 6957 Amends the Alzheimer's Disease Assistance Act. Changes the definition of "Regional Alzheimer's Disease Assistance Center" or "Regional ADA Center" from including an entity designated as such by the Illinois Department of Public Health to including an entity having a National Institutes of Health and National Institutes on Aging sponsored Alzheimer's Disease Core Center. Provides that 2 (currently one) Regional ADA Centers shall be conveniently located to serve the Chicago metropolitan area. Provides that the General Assembly shall provide grants-in-aid to each Regional ADA Center, rather than to Regional ADA Centers, for research and development and maintenance of victim's services in accordance with the State Alzheimer's Assistance Plan. LRB9001230SMdv LRB9001230SMdv 1 AN ACT to amend the Alzheimer's Disease Assistance Act by 2 changing Sections 3, 4, and 7. 3 Be it enacted by the People of the State of Illinois, 4 represented in the General Assembly: 5 Section 5. The Alzheimer's Disease Assistance Act is 6 amended by changing Sections 3, 4, and 7 as follows: 7 (410 ILCS 405/3) (from Ch. 111 1/2, par. 6953) 8 Sec. 3. Definitions. As used in this Act: 9 (a) "Alzheimer's disease and related disorders" means a 10 health condition resulting from significant destruction of 11 brain tissue with resultant loss of brain function, 12 including, but not limited to, progressive, degenerative and 13 dementing illnesses including presenile and senile dementias, 14 including Alzheimer's disease and other related disorders. 15 (b) "Regional Alzheimer's Disease Assistance Center" or 16 "Regional ADA Center" means anyapostsecondary higher 17 educational institution having a medical school in 18 affiliation with a medical center and having a National 19 Institutes of Health and National Institutes on Aging 20 sponsored Alzheimer's Disease Core Center, and designated as21such by the Illinois Department of Public Health under22Section 4 of this Act. 23 (c) "Primary Alzheimer's provider" means a licensed 24 hospital, a medical center under the supervision of a 25 physician licensed to practice medicine in all of its 26 branches, or a medical center that provides medical 27 consultation, evaluation, referral and treatment to persons 28 who may be or who have been diagnosed as victims of 29 Alzheimer's disease or related disorders pursuant to 30 policies, standards, criteria and procedures adopted under an 31 affiliation agreement with a Regional ADA Center under this -2- LRB9001230SMdv 1 Act. 2 (d) "Alzheimer's disease assistance network" or "ADA 3 network" means the various health, mental health and social 4 services agencies that provide referral, treatment and 5 support services under standards and plans adopted and 6 implemented in conjunction with a Regional ADA Center. 7 (e) "ADA Advisory Committee" or "Advisory Committee" or 8 "Committee" means the Alzheimer's Disease Advisory Committee 9 created under Section 6 of this Act. 10 (f) "Department" means the Illinois Department of Public 11 Health. 12 (Source: P.A. 84-378; 84-513.) 13 (410 ILCS 405/4) (from Ch. 111 1/2, par. 6954) 14 Sec. 4. Development of standards for a service network 15 and designation of regional centers and primary providers. 16 By January 1, 1987, the Department, in consultation with the 17 Advisory Committee, shall develop standards for the conduct 18 of research and for the identification, evaluation, 19 diagnosis, referral and treatment of victims of Alzheimer's 20 disease and related disorders and their families through the 21 ADA network of designated regional centers and other 22 providers of service under this Act. Such standards shall 23 include: 24 (a) A description of the specific populations and 25 geographic areas to be served through ADA networks that may 26 be established under this Act; 27 (b) Standards, criteria and procedures for designation 28 of Regional ADA Centers, which ensure the provision of 29 quality care to a broad segment of the population through 30 on-site facilities and services and through a network of 31 primary Alzheimer's providers and other providers of service 32 that may be available within the service area defined by the 33 Department. At least 2oneRegional ADA CentersCentershall -3- LRB9001230SMdv 1 be conveniently located to serve the Chicago metropolitan 2 area and at least one Regional ADA Center shall be 3 conveniently located to serve the balance of the State. The 4 Regional ADA Centers shall provide at least the following: 5 (1) Comprehensive diagnosis and treatment facilities and 6 services which have (i) professional medical staff 7 specially-trained in geriatric medicine, neurology, 8 psychiatry and pharmacology, and the detection, diagnosis and 9 treatment of Alzheimer's disease and related disorders, (ii) 10 sufficient support staff who are trained as caregivers to 11 victims of Alzheimer's disease and related disorders, (iii) 12 appropriate and adequate equipment necessary for diagnosis 13 and treatment, (iv) transportation services necessary for 14 outreach to the service area defined by the Department and 15 for assuring access of patients to available services, (v) 16 and such other support services, staff and equipment as may 17 be required; 18 (2) Consultation and referral services for victims and 19 their families to ensure informed consent to treatment and to 20 assist them in obtaining necessary assistance and support 21 services through primary Alzheimer's providers and various 22 private and public agencies that may otherwise be available 23 to provide services under this Act; 24 (3) Research programs and facilities to assist faculty 25 and students in discovering the cause of and the diagnosis, 26 cure and treatment for Alzheimer's disease and related 27 disorders; 28 (4) Training, consultation and continuing education for 29 caregivers, including families of those who are affected by 30 Alzheimer's disease and related disorders; 31 (5) Centralized data collection, processing and storage 32 that will serve as a clearinghouse of information to assist 33 victims, families and ADA Resources, and to facilitate 34 research; and -4- LRB9001230SMdv 1 (6) Programs of scientific and medical research in 2 relation to Alzheimer's disease and related disorders that 3 are designed and conducted in a manner that may enable such 4 center to qualify for Federal financial participation in the 5 cost of such programs. 6 (c) Procedures for recording and reporting research and 7 treatment results by primary Alzheimer's providers and other 8 affiliated providers of service that are within the ADA 9 network to the Regional ADA Center and to the Department; 10 (d) Policies, procedures and minimum standards and 11 criteria to be included in affiliation agreements between 12 primary Alzheimer's providers and the Regional ADA Center in 13 the conduct of any research and in the diagnosis, referral 14 and treatment of victims of Alzheimer's disease and related 15 disorders and their families; and 16 (e) Policies, procedures, standards and criteria, 17 including medical and financial eligibility factors, 18 governing admission to and utilization of the programs, 19 facilities and services available through the ADA network by 20 persons who may be or who have been diagnosed as victims of 21 Alzheimer's disease and related disorders, including forms 22 and procedures for obtaining necessary patient consents to 23 participation in research, and in the reporting and 24 processing of appropriate information in a patient's medical 25 records in relation to consultations, referrals and 26 treatments by the various providers of service within the ADA 27 network. 28 (Source: P.A. 84-378; 84-513.) 29 (410 ILCS 405/7) (from Ch. 111 1/2, par. 6957) 30 Sec. 7. Regional ADA center grants-in-aid. Pursuant to 31 appropriations enacted by the General Assembly, the 32 Department shall provide grants-in-aid to each Regional ADA 33 CenterCentersfor necessary research and for the development -5- LRB9001230SMdv 1 and maintenance of services for victims of Alzheimer's 2 disease and related disorders and families in accordance with 3 the State Alzheimer's Assistance Plan. The Department shall 4 promulgate rules and procedures governing the distribution 5 and specific purposes for such grants, including any 6 contributions of recipients of services toward the cost of 7 care. 8 (Source: P.A. 84-378; 84-513.)