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90_SB1838sam001 LRB9011663RCcdam 1 AMENDMENT TO SENATE BILL 1838 2 AMENDMENT NO. . Amend Senate Bill 1838 as follows: 3 by replacing the title with the following: 4 "AN ACT to amend the Community Services Act by adding 5 Section 4.3."; and 6 by replacing everything after the enacting clause with the 7 following: 8 "Section 5. The Community Services Act is amended by 9 adding Section 4.3 as follows: 10 (405 ILCS 30/4.3 new) 11 Sec. 4.3. Family Support Services Voucher Pilot Program. 12 (a) In this Section: 13 "Family member" means a family member as defined by rules 14 adopted by the Department of Human Services. 15 "Family support services" means the services and 16 activities described in subsection (d). 17 (b) The Department of Human Services shall establish a 18 Family Support Services Voucher Pilot Program which shall be 19 a conversion of the program defined in Section 4. The 20 Department may establish no more than 5 pilot programs. 21 (c) The purpose of the pilot program is to do the -2- LRB9011663RCcdam 1 following: 2 (1) Increase the number of families who are able to 3 access family support services. 4 (2) Provide families with greater control over 5 family support services. 6 (3) Ensure that the diverse family support services 7 needs of families can be accommodated. 8 (4) Encourage a family's contribution toward 9 payment for the family support services they receive. 10 (5) Serve as a pilot program to evaluate the merits 11 of a family support services voucher program in 12 comparison to the traditional respite program. 13 (d) The Department shall contract with community 14 agencies to issue vouchers to participating families, or to 15 employ a voucher-like method that similarly makes services 16 available based on the choice of families. A family may use 17 the vouchers to purchase the following services and 18 activities or to otherwise provide for those services and 19 activities: 20 (1) Services of an in-home caregiver to supervise 21 the family member with a developmental disability in the 22 home or in the community or both when other family 23 members are not present. 24 (2) Services of a person to accompany the family 25 member with a developmental disability on outings, 26 community activities, and similar activities. 27 (3) Registration of the family member with a 28 developmental disability in park district programs, 29 extracurricular school activities, community college 30 classes, and other similar types of community-based 31 programs. 32 (4) Services of home health care personnel if 33 medical training or expertise is required to meet the 34 needs of the family member with a developmental -3- LRB9011663RCcdam 1 disability. 2 (e) Families may employ the following types of 3 individuals to provide family support services: 4 (1) Related family members who do not reside in the 5 same home as the family member with a developmental 6 disability. 7 (2) Friends or neighbors whom the family designates 8 as capable of meeting the needs of the family member with 9 a developmental disability. 10 (3) Individuals recruited from the community (for 11 example, church members or college students). 12 (4) Individuals who work with the family member 13 with a developmental disability in a different capacity 14 (for example, classroom aide or day program staff). 15 (5) Persons whose services are contracted for 16 through a home health agency licensed under the Home 17 Health Agency Licensing Act. 18 (f) Family support services moneys under the pilot 19 program may not be used to purchase or provide for any of the 20 following services or activities: 21 (1) Out-of-home medical services. 22 (2) Medical, therapeutic, or developmental 23 evaluations. 24 (3) Any product or item (for example, sports 25 equipment, therapeutic devices, or clothing). 26 (4) Family support services provided by a family 27 member whose primary residence is the same as that of the 28 family member with a developmental disability. 29 (5) Services of a person to accompany the family on 30 an overnight trip. 31 (6) Any service or activity that should be provided 32 by the school in which the family member with a 33 developmental disability is enrolled or that occurs as 34 part of that school's typical school routine. -4- LRB9011663RCcdam 1 (7) Child care services while the primary caretaker 2 works. 3 (g) The Department of Human Services shall submit a 4 report to the General Assembly by March 1, 2000 evaluating 5 the merits of the pilot program. 6 Section 99. Effective date. This Act takes effect 7 January 1, 1999.".