Public Act 094-0631
HB0480 Enrolled LRB094 06314 LJB 36389 b

    AN ACT concerning public health, which may be referred to
as Adamin and Ryan's Law.
    Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
    Section 1. Short title. This Act may be cited as the
Newborn Eye Pathology Act.
    Section 5. Policy. It is the policy of the State of
Illinois to make efforts to detect pediatric congenital ocular
abnormalities that lead to premature death, blindness, or
vision impairment unless treated soon after birth.
    Section 10. Newborn Eye Pathology Advisory Committee.
    (a) By January 1, 2006, the Department of Public Health
shall organize a Newborn Eye Pathology Advisory Committee and
appoint members of the Advisory Committee, including, but not
limited to, the following:
        (1) Three ophthalmologists with backgrounds in or
    knowledge of providing services to infants with
    retinoblastoma, one from the Chicago metropolitan area,
    one representing DuPage, Kane, Lake, McHenry, and Will
    counties, and one from the southern counties of Illinois.
        (2) A pediatric ophthalmologist who sees general
    pediatric patients and is a designee of the American
    Association for Pediatric Ophthalmology and Strabismus.
        (3) An academic pediatrician with a background in or
    knowledge of infant eye pathology.
        (4) Three parents representing families with child
    blindness or other ocular abnormalities affecting vision,
    one from the Chicago metropolitan area, one representing
    DuPage, Kane, Lake, McHenry, and Will counties, and one
    from the southern counties of Illinois.
        (5) Two community pediatricians.
        (6) A nurse with a background in or knowledge of the
    current Department's program for instillation of eye drops
    to prevent conjunctivitis.
        (7) A retinal specialist with research experience in
    detecting the signs of treatable congenital eye disease.
        (8) An optometrist with a background in or experience
    with pupil dilation in infants and red reflex screening for
    intraocular pathology.
    (b) The Advisory Committee members shall serve without
compensation, but shall be reimbursed for necessary travel
expenses incurred in the performance of their duties.
    (c) The duties of the Advisory Committee shall be to do all
of the following:
        (1) Develop and conduct training for hospitals
    implementing newborn eye pathology.
        (2) Develop a referral system for early intervention
    services for those infants diagnosed with a congenital
    abnormality of the eye.
        (3) Develop educational and informational materials
    for hospital personnel, health care professionals, and
    parents on appropriate follow-up procedures for infants
    diagnosed with a congenital abnormality of the eye.
        (4) Monitor any reports made available to the State
    with respect to the eye pathology status of all newborns.
    Section 15. Department of Public Health.
    (a) All hospitals shall report information on all
congenital abnormalities or diseases of the eye detected in
newborns to the Department of Public Health. Reports shall be
made to the Department's Adverse Pregnancy Outcomes Reporting
    (b) The Department of Public Health shall maintain a
registry of cases of reported congenital abnormalities or
diseases of the eye in newborns, including information needed
for the purpose of follow-up service. This information shall be
treated in the same manner as information under the
Communicable Disease Report Act.
    (c) Any person or hospital making a report under this Act
shall have immunity from any liability, civil or criminal, that
may result by reason of making the report, except for willful
or wanton misconduct.
    Section 20. Rules. The Department of Public Health shall
adopt rules necessary to implement this Act.
    Section 99. Effective date. This Act takes effect July 1,

Effective Date: 8/19/2005