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Public Act 096-1485 | ||||
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AN ACT concerning education.
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Be it enacted by the People of the State of Illinois,
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represented in the General Assembly:
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Section 1. Short title. This Act may be cited as the Care | ||||
of Students with Diabetes Act. | ||||
Section 5. Legislative findings. The General Assembly | ||||
finds the following: | ||||
(1) Diabetes is a serious chronic disease in which the | ||||
pancreas does not make insulin (Type 1) or the body cannot | ||||
use insulin properly (Type 2).
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(2) Diabetes must be managed 24 hours a day to avoid | ||||
the potentially life-threatening, short-term consequences | ||||
of low blood sugar and prevent or delay the serious | ||||
complications caused by blood sugar levels that are too | ||||
high for too long, such as atherosclerosis, coronary artery | ||||
disease, peripheral vascular disease, hypertension, | ||||
blindness, kidney failure, amputation, and stroke.
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(3) Federal law affords people with diabetes specific | ||||
rights and protections. These laws include Section 504 of | ||||
the Rehabilitation Act of 1973, the Individuals with | ||||
Disabilities Education Improvement Act of 2004, and the | ||||
Americans with Disabilities Act of 1990, and the ADA | ||||
Amendments Act of 2008.
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(4) Federal laws enforced consistently in schools | ||
provide students with diabetes equal educational | ||
opportunities and a healthy and safe environment. | ||
(5) A school nurse is the most appropriate person in a | ||
school setting to provide for all students' healthcare | ||
needs; however, a school nurse may not be available when | ||
needed, and many schools do not have a full-time nurse.
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(6) Many students are capable of checking their blood | ||
glucose levels, calculating a carbohydrate-to-insulin | ||
ratio, and administering insulin independently. Allowing | ||
capable students to manage diabetes independently in | ||
school is consistent with the recommendations of pediatric | ||
endocrinologists and certified diabetes educators and | ||
other specialists.
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(7) Because appropriate and consistent diabetes care | ||
decreases the risks of serious short-term and long-term | ||
complications, increases a student's learning | ||
opportunities, and promotes individual and public health | ||
benefits, the General Assembly deems it in the public | ||
interest to enact this Act.
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Section 10. Definitions. As used in this Act:
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"Delegated care aide" means a school employee who has | ||
agreed to receive training in diabetes care and to assist | ||
students in implementing their diabetes care plan and has | ||
entered into an agreement with a parent or guardian and the |
school district or private school.
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"Diabetes care plan" means a document that specifies the | ||
diabetes-related services needed by a student at school and at | ||
school-sponsored activities and identifies the appropriate | ||
staff to provide and supervise these services.
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"Health care provider" means a physician licensed to | ||
practice medicine in all of its branches, advanced practice | ||
nurse who has a written agreement with a collaborating | ||
physician who authorizes the provision of diabetes care, or a | ||
physician assistant who has a written supervision agreement | ||
with a supervising physician who authorizes the provision of | ||
diabetes care. | ||
"Principal" means the principal of the school.
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"School" means any primary or secondary public, charter, or | ||
private school located in this State.
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"School employee" means a person who is employed by a | ||
public school district or private school, a person who is | ||
employed by a local health department and assigned to a school, | ||
or a person who contracts with a school or school district to | ||
perform services in connection with a student's diabetes care | ||
plan.
This definition must not be interpreted as requiring a | ||
school district or private school to hire additional personnel | ||
for the sole purpose of serving as a designated care aide. | ||
Section 15. Diabetes care plan.
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(a) A diabetes care plan shall serve as the basis of a |
student's Section 504 plan (29 U.S.C. Sec. 794) and shall be | ||
signed by a student's parent or guardian and submitted to the | ||
school for any student with diabetes who seeks assistance with | ||
diabetes care in the school setting, unless the student has | ||
been managing his or her diabetes care in the school setting | ||
before the effective date of this Act, in which case the | ||
student's parent or guardian may sign and submit a diabetes | ||
care plan under this Act. It is the responsibility of the | ||
student's parent or guardian to share the health care | ||
provider's instructions concerning the student's diabetes | ||
management during the school day.
The diabetes care plan shall | ||
include the treating health care provider's instructions | ||
concerning the student's diabetes management during the school | ||
day, including a copy of the signed prescription and the | ||
methods of insulin administration. | ||
(b) The services and accommodations specified in a diabetes | ||
care plan shall be reasonable, reflect the current standard of | ||
diabetes care, include appropriate safeguards to ensure that | ||
syringes and lancets are disposed of properly, and include | ||
requirements for diet, glucose testing, insulin | ||
administration, and treatment for hypoglycemia, hyperglycemia, | ||
and emergency situations.
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(c) A diabetes care plan shall include a uniform record of | ||
glucometer readings and insulin administered by the school | ||
nurse or delegated care aide during the school day using a | ||
standardized format provided by the State Board of Education. |
(d) A diabetes care plan shall include procedures regarding | ||
when a delegated care aide shall consult with the parent or | ||
guardian, school nurse, where available, or health care | ||
provider to confirm that an insulin dosage is appropriate. | ||
(e) A diabetes care plan shall be submitted to the school | ||
at the beginning of the school year; upon enrollment, as soon | ||
as practical following a student's diagnosis; or when a | ||
student's care needs change during the school year.
Parents | ||
shall be responsible for informing the school in a timely | ||
manner of any changes to the diabetes care plan and their | ||
emergency contact numbers. | ||
Section 20. Delegated care aides.
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(a) Delegated care aides shall perform the duties necessary | ||
to assist a student with diabetes in accordance with his or her | ||
diabetes care plan and in compliance with any guidelines | ||
provided during training under Section 25 of this Act.
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(b) In accordance with the diabetes care plan or when an | ||
unexpected snack or meal requires a dose of insulin not | ||
anticipated by a student's diabetes care plan, the delegated | ||
care aide shall consult with the parent or guardian, school | ||
nurse, where available, or health care provider to confirm that | ||
the insulin dosage is appropriate given the number of | ||
carbohydrates to be taken and the student's blood glucose level | ||
as determined by a glucometer reading. | ||
(c) The principal shall facilitate compliance with the |
provisions of a diabetes care plan.
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(d) Delegated care aides are authorized to provide | ||
assistance by a student's parents or guardian and the school | ||
district or private school. | ||
Section 25. Training for school employees and delegated | ||
care aides.
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(a) In schools that have a student with diabetes, all | ||
school employees shall receive training in the basics of | ||
diabetes care, how to identify when a student with diabetes | ||
needs immediate or emergency medical attention, and whom to | ||
contact in the case of an emergency during a regular in-service | ||
training as provided for by Section 10-22.39 of the School | ||
Code. | ||
(b) Delegated care aides shall be trained to perform the | ||
tasks necessary to assist a student with diabetes in accordance | ||
with his or her diabetes care plan, including training to do | ||
the following:
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(1) check blood glucose and record results;
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(2) recognize and respond to the symptoms of | ||
hypoglycemia according to the diabetes care plan;
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(3) recognize and respond to the symptoms of | ||
hyperglycemia according to the diabetes care plan;
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(4) estimate the number of carbohydrates in a snack or | ||
lunch;
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(5) administer insulin according to the student's |
diabetes care plan and keep a record of the amount | ||
administered; and | ||
(6) respond in an emergency, including how to | ||
administer glucagon and call 911. | ||
(c) The school district shall coordinate staff training. | ||
(d) Initial training shall be provided by a licensed | ||
healthcare provider with expertise in diabetes or a certified | ||
diabetic educator and individualized by a student's parent or | ||
guardian. Training must be consistent with the guidelines | ||
provided by the U.S. Department of Health and Human Services in | ||
the guide for school personnel entitled "Helping the Student | ||
with Diabetes Succeed". The training shall be updated when the | ||
diabetes care plan is changed and at least annually.
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(e) School nurses, where available, or health care | ||
providers may provide technical assistance or consultation or | ||
both to delegated care aides. | ||
(f) An information sheet shall be provided to any school | ||
employee who transports a student for school-sponsored | ||
activities. It shall identify the student with diabetes, | ||
identify potential emergencies that may occur as a result of | ||
the student's diabetes and the appropriate responses to such | ||
emergencies, and provide emergency contact information. | ||
Section 30. Self-management.
Provided that the student is | ||
authorized according to his or her diabetes care plan, a | ||
student shall be permitted to do the following: |
(1) check blood glucose when and wherever needed; | ||
(2) administer insulin with the insulin delivery | ||
system used by the student;
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(3) treat hypoglycemia and hyperglycemia and otherwise | ||
attend to the care and management of his or her diabetes in | ||
the classroom, in any area of the school or school grounds | ||
and at any school-related activity or event in accordance | ||
with the diabetes care plan; and | ||
(4)
possess on his or her person, at all times, the | ||
supplies and equipment necessary to monitor and treat | ||
diabetes, including, but not limited to, glucometers, | ||
lancets, test strips, insulin, syringes, insulin pens and | ||
needle tips, insulin pumps, infusion sets, alcohol swabs, a | ||
glucagon injection kit, glucose tablets, and food and | ||
drink, in accordance with the diabetes care plan.
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Section 35. Restricting access to school prohibited.
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school district shall not restrict the assignment of a student | ||
with diabetes to a particular school on the basis that the | ||
school does not have a full-time school nurse, nor shall a | ||
school deny a student access to any school or school-related | ||
activities on the basis that a student has diabetes.
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Section 40. Protections against retaliation.
A school | ||
employee shall not be subject to any penalty, sanction, | ||
reprimand, discharge, demotion, denial of a promotion, |
withdrawal of benefits, or other disciplinary action for | ||
choosing not to agree to serve as a delegated care aide.
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Section 45. Civil immunity.
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(a) A school or a school employee is not liable for civil | ||
or other damages as a result of conduct, other than willful or | ||
wanton misconduct, related to the care of a student with | ||
diabetes.
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(b) A school employee shall not be subject to any | ||
disciplinary proceeding resulting from an action taken in | ||
compliance with this Act, unless the action constitutes willful | ||
or wanton misconduct.
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Section 50. Federal law. Nothing in this Act shall limit | ||
any rights available under federal law. | ||
Section 95. The State Mandates Act is amended by adding | ||
Section 8.34 as follows: | ||
(30 ILCS 805/8.34 new) | ||
Sec. 8.34. Exempt mandate. Notwithstanding Sections 6 and 8 | ||
of this Act, no reimbursement by the State is required for the | ||
implementation of any mandate created by this amendatory Act of | ||
the 96th General Assembly.
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Section 99. Effective date. This Act takes effect upon | ||
becoming law.
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