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Public Act 099-0142
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| HB3158 Enrolled | LRB099 06581 JLK 26654 b |
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AN ACT concerning health.
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Be it enacted by the People of the State of Illinois,
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represented in the General Assembly:
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Section 1. Short title. This Act may be known as the Down |
Syndrome Information and Awareness Act.
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Section 5. Definitions. As used in this Act:
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"Clearinghouse" means a central institution or agency for |
the collection, maintenance, and distribution of materials |
related to Down syndrome.
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"Department" means the Department of Public Health. |
"Down syndrome" means a chromosomal condition caused by an |
error in cell division that results in the presence of an extra |
whole or partial copy of chromosome 21.
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"First call program" means a volunteer group of individuals |
who make themselves available to parents of children newly |
diagnosed with Down syndrome.
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"Health care provider" means any physician, hospital |
facility, or other person that is licensed or otherwise |
authorized to deliver health care services.
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Section 10. Down syndrome information. The Department |
shall make available up-to-date, evidence-based written |
information about Down syndrome that has been reviewed by |
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medical experts and State and national Down syndrome |
organizations, including physical, developmental, educational |
and psychosocial outcomes, life expectancy, clinical course, |
intellectual and functional development, and treatment |
options. The written information shall include contact |
information regarding first call programs and clearinghouses, |
national, State and local Down syndrome organizations, and |
other educational and support programs. The Department shall |
make this information available to persons who render prenatal |
care, postnatal care, or genetic counseling to parents who |
receive a prenatal or postnatal diagnosis of Down syndrome. The |
Department shall also make this information available to any |
person who has received a positive test result from a test for |
Down syndrome. The information provided under this Section |
shall be culturally and linguistically appropriate for a woman |
receiving a positive prenatal diagnosis of Down syndrome and |
for the family of a child receiving a postnatal diagnosis of |
Down syndrome.
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Section 15. Distribution of information to parents. A |
health care provider who renders prenatal or postnatal care or |
genetic counselor who renders genetic counseling may, upon |
receipt of a positive test result from a test for Down |
syndrome, provide the expectant or new parent with the |
information provided by the Department under Section 10 of this |
Act.
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