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Public Act 103-0964


 

Public Act 0964 103RD GENERAL ASSEMBLY

 


 
Public Act 103-0964
 
SB3277 EnrolledLRB103 36743 CES 66853 b

    AN ACT concerning health.
 
    Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
 
    Section 1. References to Act. This Act may be referred to
as the Duchenne Muscular Dystrophy Act.
 
    Section 5. The Department of Public Health Powers and
Duties Law of the Civil Administrative Code of Illinois is
amended by adding Section 2310-730 as follows:
 
    (20 ILCS 2310/2310-730 new)
    Sec. 2310-730. Duchenne Muscular Dystrophy Awareness
Program.
    (a) Subject to appropriation, the Department of Public
Health, in conjunction with experts in the field of Duchenne
muscular dystrophy, shall develop mandatory protocols and best
practices for providing the necessary medical guidance for
Duchenne muscular dystrophy in Illinois.
    (b) To raise awareness about Duchenne muscular dystrophy,
the protocols and best practices developed by the Department
under subsection (a):
        (1) shall be published on a designated and publicly
    accessible webpage;
        (2) shall include up-to-date information about
    Duchenne muscular dystrophy;
        (3) shall reference peer-reviewed scientific research
    articles;
        (4) shall incorporate guidance and recommendations
    from the National Institutes of Health, and any other
    persons or entities determined by the Department to have
    particular expertise in Duchenne muscular dystrophy; and
        (5) shall be distributed to physicians, other health
    care professionals and providers, and persons subject to
    Duchenne muscular dystrophy.
    (c) The Department shall prepare a report of all efforts
undertaken by the Department under this Section. The report
shall be posted on the Department's website and distributed to
local health departments and to any other facilities as
determined by the Department.

Effective Date: 1/1/2025