Public Act 90-0404 of the 90th General Assembly

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Public Act 90-0404

SB327 Enrolled                                 LRB9002552SMcw

    AN ACT to amend the Alzheimer's Disease Assistance Act by
changing Sections 3, 4, and 7.

    Be it enacted by the People of  the  State  of  Illinois,
represented in the General Assembly:

    Section  5.   The  Alzheimer's  Disease Assistance Act is
amended by changing Sections 3, 4, and 7 as follows:

    (410 ILCS 405/3) (from Ch. 111 1/2, par. 6953)
    Sec. 3.  Definitions.  As used in this Act:
    (a)  "Alzheimer's disease and related disorders" means  a
health  condition  resulting  from significant destruction of
brain  tissue  with  resultant  loss   of   brain   function,
including,  but not limited to, progressive, degenerative and
dementing illnesses including presenile and senile dementias,
including Alzheimer's disease and other related disorders.
    (b)  "Regional Alzheimer's Disease Assistance Center"  or
"Regional  ADA  Center"  means  any  a  postsecondary  higher
educational   institution   having   a   medical   school  in
affiliation with a  medical  center  and  having  a  National
Institutes   of  Health  and  National  Institutes  on  Aging
sponsored Alzheimer's Disease Core Center, and designated  as
such  by  the  Illinois  Department  of  Public  Health under
Section 4 of this Act. Any  Regional  ADA  Center  which  was
designated  as  having  a  National  Alzheimer's Disease Core
Center but no longer carries such designation shall  continue
to serve as a Regional ADA Center.
    (c)  "Primary  Alzheimer's  provider"  means  a  licensed
hospital,  a  medical  center  under  the  supervision  of  a
physician  licensed  to  practice  medicine  in  all  of  its
branches,   or   a   medical  center  that  provides  medical
consultation, evaluation, referral and treatment  to  persons
who  may  be  or  who  have  been  diagnosed  as  victims  of
Alzheimer's   disease   or   related  disorders  pursuant  to
policies, standards, criteria and procedures adopted under an
affiliation agreement with a Regional ADA Center  under  this
Act.
    (d)  "Alzheimer's  disease  assistance  network"  or "ADA
network" means the various health, mental health  and  social
services   agencies  that  provide  referral,  treatment  and
support  services  under  standards  and  plans  adopted  and
implemented in conjunction with a Regional ADA Center.
    (e)  "ADA Advisory Committee" or "Advisory Committee"  or
"Committee"  means the Alzheimer's Disease Advisory Committee
created under Section 6 of this Act.
    (f)  "Department" means the Illinois Department of Public
Health.
(Source: P.A. 84-378; 84-513.)

    (410 ILCS 405/4) (from Ch. 111 1/2, par. 6954)
    Sec. 4.  Development of standards for a  service  network
and  designation  of  regional centers and primary providers.
By January 1, 1987, the Department, in consultation with  the
Advisory  Committee,  shall develop standards for the conduct
of  research  and   for   the   identification,   evaluation,
diagnosis,  referral  and treatment of victims of Alzheimer's
disease and related disorders and their families through  the
ADA   network   of  designated  regional  centers  and  other
providers of service under this Act.   Such  standards  shall
include:
    (a)  A   description  of  the  specific  populations  and
geographic areas to be served through ADA networks  that  may
be established under this Act;
    (b)  Standards,  criteria  and procedures for designation
of Regional  ADA  Centers,  which  ensure  the  provision  of
quality  care  to  a  broad segment of the population through
on-site facilities and services  and  through  a  network  of
primary  Alzheimer's providers and other providers of service
that may be available within the service area defined by  the
Department.  At least 2 one Regional ADA Centers Center shall
be  conveniently  located  to  serve the Chicago metropolitan
area  and  at  least  one  Regional  ADA  Center   shall   be
conveniently  located to serve the balance of the State.  The
Regional ADA Centers shall provide at least the following:
    (1)  Comprehensive diagnosis and treatment facilities and
services  which   have   (i)   professional   medical   staff
specially-trained    in    geriatric   medicine,   neurology,
psychiatry and pharmacology, and the detection, diagnosis and
treatment of Alzheimer's disease and related disorders,  (ii)
sufficient  support  staff  who  are trained as caregivers to
victims of Alzheimer's disease and related  disorders,  (iii)
appropriate  and  adequate  equipment necessary for diagnosis
and treatment, (iv)  transportation  services  necessary  for
outreach  to  the  service area defined by the Department and
for assuring access of patients to  available  services,  (v)
and  such  other support services, staff and equipment as may
be required;
    (2)  Consultation and referral services for  victims  and
their families to ensure informed consent to treatment and to
assist  them  in  obtaining  necessary assistance and support
services through primary Alzheimer's  providers  and  various
private  and  public agencies that may otherwise be available
to provide services under this Act;
    (3)  Research programs and facilities to  assist  faculty
and  students  in discovering the cause of and the diagnosis,
cure  and  treatment  for  Alzheimer's  disease  and  related
disorders;
    (4)  Training, consultation and continuing education  for
caregivers,  including  families of those who are affected by
Alzheimer's disease and related disorders;
    (5)  Centralized data collection, processing and  storage
that  will  serve as a clearinghouse of information to assist
victims,  families  and  ADA  Resources,  and  to  facilitate
research; and
    (6)  Programs  of  scientific  and  medical  research  in
relation to Alzheimer's disease and  related  disorders  that
are  designed  and conducted in a manner that may enable such
center to qualify for Federal financial participation in  the
cost of such programs.
    (c)  Procedures  for recording and reporting research and
treatment results by primary Alzheimer's providers and  other
affiliated  providers  of  service  that  are  within the ADA
network to the Regional ADA Center and to the Department;
    (d)  Policies,  procedures  and  minimum  standards   and
criteria  to  be  included  in affiliation agreements between
primary Alzheimer's providers and the Regional ADA Center  in
the  conduct  of  any research and in the diagnosis, referral
and treatment of victims of Alzheimer's disease  and  related
disorders and their families; and
    (e)  Policies,   procedures,   standards   and  criteria,
including  medical   and   financial   eligibility   factors,
governing  admission  to  and  utilization  of  the programs,
facilities and services available through the ADA network  by
persons  who  may be or who have been diagnosed as victims of
Alzheimer's disease and related  disorders,  including  forms
and  procedures  for  obtaining necessary patient consents to
participation  in  research,  and  in   the   reporting   and
processing  of appropriate information in a patient's medical
records  in  relation   to   consultations,   referrals   and
treatments by the various providers of service within the ADA
network.
(Source: P.A. 84-378; 84-513.)

    (410 ILCS 405/7) (from Ch. 111 1/2, par. 6957)
    Sec.  7.  Regional ADA center grants-in-aid.  Pursuant to
appropriations  enacted  by   the   General   Assembly,   the
Department  shall  provide grants-in-aid to each Regional ADA
Center Centers for necessary research and for the development
and  maintenance  of  services  for  victims  of  Alzheimer's
disease and related disorders and families in accordance with
the State Alzheimer's Assistance Plan. The  first  $2,000,000
of any grants-in-aid appropriated by the General Assembly for
Regional  ADA  Centers  in  any  State  fiscal  year shall be
distributed in equal portions to those Regional  ADA  Centers
receiving the appropriated grants-in-aid for the State fiscal
year  beginning July 1, 1996. The first $400,000 appropriated
by the General Assembly in excess of $2,000,000 in any  State
fiscal  year  beginning  on  or  after  July 1, 1997 shall be
distributed in equal portions to those Regional  ADA  Centers
receiving the appropriated grants-in-aid for the State fiscal
year  beginning July 1, 1996.  Any monies appropriated by the
General Assembly in excess of $2,400,000 for any State fiscal
year beginning on or after July 1, 1997 shall be  distributed
in equal portions to each Regional ADA Center. The Department
shall   promulgate   rules   and   procedures  governing  the
distribution and specific purposes for such grants, including
any contributions of recipients of services toward  the  cost
of care.
(Source: P.A. 84-378; 84-513.)

    Section  99.  Effective date.  This Act takes effect upon
becoming law.

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