Name | Firm, Business Or Agency | Representing |
Hearing Date and Time: Public Health (S) 5/12/2015 1:00 PM |
AJ Wilhelmi | Illinois Hospital Association | Illinois Hospital Association |
Alex and Trisha Hunt | Colleague of ALD Parent | Colleague of ALD Parent |
April Haynes | Colleague of ALD Parent | ALD Parent |
April Wagner | ALD grandparent | ALD Grandparent |
April Wagner | ALD Grandparent and Sibling | Grandson and siblings |
Ben Wagner | ALD uncle | ALD Uncle |
Bethany Holeman | Colleague of ALD Parent | ALD Parent |
Bob Rauner | United Leukodystrophy Foundation | United Leukodystrophy Foundation |
Bryce LaBorde | ALD Parent | NA |
Cambrea Hilst | Friend of ALD parent | Friend of ALD parent |
Caren Chambers | Friend of ALD parent | ALD Parent |
Christina LaBorde | ALD Parent | ALD Parent |
Christina LaBorde | ALD Parent | Son |
Conny Moody | Illinois Department of Public Health | Illinois Department of Public Health |
Deborah Franchi-Nakroshis | x | record of appearance only |
Felicia Oakley | Friend of ALD parent | Self |
Jane Hodel | ALD Grandparent | ALD Grandparent |
Janette Wagner | self | ALD Grandparent |
Jennifer Litherland | Expectant Mother | Self |
Julie Hartzler | Self | Self |
Kailin Ford | Self | Self |
Katherine Rhoades | Friend | ALD Parent |
KATHLEEN CORNELL | Self | NA |
Kelly Golding | concerned citizen | concerned citizen |
Lindsay huntter | Self | Lindsay hunter |
Pamela Marshall | Global Foundation for Peroxisomal Disorders | Showing my support for all children and families past, present, and future impacted by ALD and other peroxisomal disorders. |
Robin Hernandez | Self | Brother with ALD child |
Samantha Cross | Expectant Mother | Self |
Scott Hancock | Friend | ALD Parent |
Sheena Curto | Self | Self |
Steve Wagner | ALD Grandparent | ALD Grandparent |
Susan Ryia | Self | Self |
Suzanne Flynn | Home | ald family |
Theresa Buchanan | Friend | Self |
Hearing Date and Time: Public Health (S) 5/5/2015 1:00 PM |
Bryan Clow | IDPH | IDPH |
Hearing Date and Time: Public Health (S) 4/28/2015 1:00 PM |
Sue Clark | Capitol Edge Consulting, LLC | ANA-Illinois, |
Hearing Date and Time: Human Services (H) 3/25/2015 8:00 AM |
Abby Denis | PBD-ZSD family | |
Alice Hattenbrun | ULF Member | |
alyssa Rodgers | Ald family | |
Amanda Henricks | Parent | |
Amber Salzman | The Stop ALD Foundation | |
anastasia leger | family | |
Ann Kraus | FamilyPath Autism Serivces | |
Ann Moser | Kennedy Krieger Institute | ALD Researchers, ALD physicians, and ALD families |
Anna Moran | parent | |
April Wagner | Grandparent | |
Ashley Duvall | none | |
Barbara K Burton MD | Ann & Robert H. Lurie Children's Hospital | |
Barbara Machado | ALD Family | |
Bill Groel | Parent | |
Bob Evanosky | The Evanosky Foundation | The Evanosky Foundation |
bob rauner | United Leukodystrophy Foundation | United Leukodystrophy Foundation |
Brenda Yaste | ALD Family NBS Advocate | |
Brenna Booth | ALD advocate | |
Bryce LaBorde | ALD Parent | |
Castro Family | Family impacted by a leukodystrophy | |
Catherine Walker | Parent | |
Christina LaBorde | Parent | Parent |
David Cry | The Adrenoleukodystrophy Foundation | |
Deborah Franchi-Nakroshis | NBS Advocate | Friend |
Desiarae Dixon | ALD Family | |
Donna Conway | Parent of a child with leukodystrophy | |
Donna J Chambliss | The Global Foundation for Peroxisomal Disorders | |
Donna Swartz | XXxxxxxxxxxxxx | |
dorothy colao | newborn screening | |
Elisa Seeger | Aidan Jack Seeger Foundation | |
Emilie Beagle | NBS Advocate | |
Eve Lapin | The Stop ALD Foundation | |
Glenda Vasquez | Family impacted by a leukodystrophy | |
Grace Caruso | Leukodystrophy Family | |
Greg Benton | The Myelin Project | The Myelin Project, The Leukodystrophy Alliance, The ALD AMN Global Alliance |
Heather Scott | Jeffery family | |
Howard E Chambliss | The Global Foundation for Peroxisomal Disorders | |
Jacqueline Sapp | Aunt of a leukodystrophy child | |
Jane Cox Duffield | Parent | |
Jeanne Igo | Parent | |
Jennifer French | NBS Advocate | |
Jessica Russell | NBS Advocate | |
jessica zamudio | Head of Household | |
Jillian Ward | NBS advocate & ALD family | |
Jody Upton | ALD Family Member | Ald family |
Joel Beck | Leukodystrophy Family | |
Kathleen Bernard | Adovocate | |
Kathy Cornell | Family with ALD | |
Kelly Strenges | ALD Parent - NBS Advocate | |
Kim Easter | ALD Family | ALD Families |
leona schwartfigure | 1972 | ALD FAMILY |
leslie miller | Select... | NBS advocate |
Leslie Osman | ALD Family | |
Lindsay hunter | Self | |
Lisa DiMambro | ALD Family | |
Lonnie J Backus | ald family | ald family |
LuAnn Swartzlander | Kraus Swartzlander Family | |
Mary Pedersen | NBS Advocate | |
Michael Beldock | Health Care | |
Michael Strenges | ALD Parent | |
Molly Horst | My son has adrenallukodystrophy | |
Pamela Marshall | The Marshall Family | |
paula forsythe | NBS advocate | |
Renee Yvonne Backus | ald family | ald family |
Rose Szymkowiak | ALD Grandparent | Proponent |
Roxanne Ellis | Ellis Family | |
Sandra Melton | Melton Family | |
Sarah Wilkerson | Save Babies Through Screening Foundation | |
Shannon Butalla | Global Foundation for Peroxisomal Disorders | |
Shianne Jones | Family impacted by a leukodystrophy | |
Shiva Mohsenzadeh | X | |
Skwirut Family | Skwirut Family | |
Stephanie | Nbs supporter | |
Stephanie Lagona | Self-employed | |
Steve Barsh | The Stop ALD Foundation | |
Steven Wagner | Grandparent | |
Suzanne Flynn | ALD family boys diagnosed through NBS in New York | ALD families |
Tara Rincones | Rincones Family | |
Theresa Kaye Cantrell | Parent | |
Thomas OBrien III | NBS Advocate | |
Tina Ellis | ALD Family | |
William Lamping | NBS Advocate | |