Illinois General Assembly - Full Text of SB1726
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Full Text of SB1726  101st General Assembly


Sen. Suzy Glowiak

Filed: 3/6/2019





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2    AMENDMENT NO. ______. Amend Senate Bill 1726 by replacing
3everything after the enacting clause with the following:
4    "Section 5. The State Finance Act is amended by changing
5Section 5.180 as follows:
6    (30 ILCS 105/5.180)  (from Ch. 127, par. 141.180)
7    Sec. 5.180. The Alzheimer's Disease Research, Care, and
8Support Fund.
9(Source: P.A. 84-1308.)
10    Section 10. The Alzheimer's Disease Assistance Act is
11amended by changing Section 6 and by adding Section 8 as
13    (410 ILCS 405/6)  (from Ch. 111 1/2, par. 6956)
14    Sec. 6. Alzheimer's Disease ADA Advisory Committee.



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1    (a) There is created the Alzheimer's Disease Advisory
2Committee consisting of 17 23 voting members appointed by the
3Director of the Department, as well as 5 nonvoting members as
4hereinafter provided in this Section. The Director or his
5designee shall serve as one of the 17 23 voting members and as
6the Chairman of the Committee. Those appointed as voting
7members shall include persons who are experienced in research
8and the delivery of services to individuals with Alzheimer's
9disease or a related disorder and their families. Such members
10shall include:
11        (1) one individual from a statewide association
12    dedicated to Alzheimer's care, support, and research;
13        (2) one individual from a non-governmental statewide
14    organization that advocates for seniors;
15        (3) the Dementia Coordinator of the Illinois
16    Department of Public Health, or the Dementia Coordinator's
17    designee;
18        (4) one individual representing the Community Care
19    Program's Home and Community Services Division;
20        (5) one individual representing the Adult Protective
21    Services Unit;
22        (6) 3 individuals from Alzheimer's Disease Assistance
23    Centers;
24        (7) one individual from a statewide association
25    representing an adult day service organization;
26        (8) one individual from a statewide association



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1    representing home care providers;
2        (9) one individual from a statewide trade organization
3    representing the interests of physicians licensed to
4    practice medicine in all of its branches in Illinois;
5        (10) one individual representing long-term care
6    facilities licensed under the Nursing Home Care Act, an
7    assisted living establishment licensed under the Assisted
8    Living and Shared Housing Act, or supportive living
9    facilities;
10        (11) one individual from a statewide association
11    representing the interests of social workers;
12        (12) one individual representing Area Agencies on
13    Aging;
14        (13) the Medicaid Director of the Department of
15    Healthcare and Family Services, or the Medicaid Director's
16    designee;
17        (14) one individual from a statewide association
18    representing health education and promotion and public
19    health advocacy; and
20        (15) one individual with medical or academic
21    experience with early onset Alzheimer's disease or related
22    disorders. 3 physicians licensed to practice medicine in
23    all of its branches, one representative of a licensed
24    hospital, one registered nurse with a specialty in
25    geriatric or dementia care, one representative of a long
26    term care facility under the Nursing Home Care Act, one



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1    representative of a long term care facility under the
2    Assisted Living and Shared Housing Act, one representative
3    from a supportive living facility specially serving
4    individuals with dementia, one representative of a home
5    care agency serving individuals with dementia, one
6    representative of a hospice with a specialty in palliative
7    care for dementia, one representative of an area agency on
8    aging as defined by Section 3.07 of the Illinois Act on the
9    Aging, one representative from a leading advocacy
10    organization serving individuals with Alzheimer's disease,
11    one licensed social worker, one representative of law
12    enforcement, 2 individuals with early-stage Alzheimer's
13    disease, 3 family members or representatives of
14    individuals with Alzheimer's disease and related
15    disorders, and 3 members of the general public. Among the
16    physician appointments shall be persons with specialties
17    in the fields of neurology, family medicine, psychiatry and
18    pharmacology. Among the general public members, at least 2
19    appointments shall include persons 65 years of age or
20    older.
21    (b) In addition to the 17 23 voting members, the Directors
22of the following State agencies or their designees who are
23qualified to represent each Department's programs and services
24for those with Alzheimer's disease or related disorders shall
25serve as nonvoting members: Department on Aging, Department of
26Healthcare and Family Services, Department of Public Health,



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1Department of Human Services, and Guardianship and Advocacy
3    Each voting member appointed by the Director of Public
4Health shall serve for a term of 2 years, and until his
5successor is appointed and qualified. Members of the Committee
6shall not be compensated but shall be reimbursed for expenses
7actually incurred in the performance of their duties. No more
8than 12 voting members may be of the same political party.
9Vacancies shall be filled in the same manner as original
11    The Committee shall review all State programs and services
12provided by State agencies that are directed toward persons
13with Alzheimer's disease and related dementias, and by
14consensus recommend changes to improve the State's response to
15this serious health problem. Such recommendations shall be
16included in the State plan described in this Act.
17(Source: P.A. 97-768, eff. 1-1-13.)
18    (410 ILCS 405/8 new)
19    Sec. 8. Alzheimer's Disease Research, Care, and Support
20Fund; support. The Department, in coordination with the members
21of the Alzheimer's Disease Advisory Committee, shall make
22reasonable efforts to promote the Alzheimer's Disease
23Research, Care, and Support Fund during relevant times,
24including, but not limited to, periods of time when tax returns
25are typically received. Ways to promote the Fund include, but



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1are not limited to, issuing press releases and posting on
2social media.
3    Section 15. The Alzheimer's Disease Research Act is amended
4by changing Sections 1, 2, 3, and by adding Sections 3.1, 3.2
5and 3.3 as follows:
6    (410 ILCS 410/1)  (from Ch. 111 1/2, par. 6901)
7    Sec. 1. Short title. This Act shall be known and may be
8cited as the Alzheimer's Disease Research, Care, and Support
9Fund Act.
10(Source: P.A. 84-324.)
11    (410 ILCS 410/2)  (from Ch. 111 1/2, par. 6902)
12    Sec. 2. Contributions on tax returns. Each individual
13taxpayer required to file a return pursuant to the Illinois
14Income Tax Act desiring to contribute to the Alzheimer's
15Disease Research, Care, and Support Fund may do so by stating
16the amount of such contribution (not less than $1) on such
17return. This Section shall not apply to an amended return.
18(Source: P.A. 86-678.)
19    (410 ILCS 410/3)  (from Ch. 111 1/2, par. 6903)
20    Sec. 3. Alzheimer's Disease Research, Care, and Support
22    (a) There is created the Alzheimer's Disease Research,



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1Care, and Support Fund, a special fund in the State Treasury.
2    (b) The Department of Public Health shall deposit any
3donations received for the grant program created pursuant to
4this Act in the Alzheimer's Disease Research, Care, and Support
6    (c) The General Assembly may appropriate moneys monies in
7the Alzheimer's Disease Research, Care, and Support Fund to the
8Department of Public Health for the purpose of complying with
9the requirements under Section 4 of awarding grants pursuant to
10this Act.
11(Source: P.A. 84-1265.)
12    (410 ILCS 410/3.1 new)
13    Sec. 3.1. Dementia Coordinator.
14    (a) The full-time position of Dementia Coordinator is
15created within the Department of Public Health. The Dementia
16Coordinator shall be funded out of the Alzheimer's Disease
17Research, Care, and Support Fund. The Dementia Coordinator is
18responsible only for activities associated with and relevant to
19the successful implementation of the State of Illinois
20Alzheimer's Disease State Plan, including, but not limited to:
21        (1) coordinating quality dementia services in the
22    State to ensure dementia capability;
23        (2) using dementia-related data to coordinate with the
24    Department to improve public health outcomes;
25        (3) increasing awareness and creating



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1    dementia-specific training;
2        (4) providing access to quality coordinated care for
3    individuals with dementia in the most integrated setting
4    available;
5        (5) establishing and maintaining relationships with
6    other agencies and organizations within the State in order
7    to meet the needs of the affected population and prevent
8    duplication of services;
9        (6) identifying and managing grants to assist in the
10    funding of the position of Dementia Coordinator and other
11    programs and services to assist Illinois in becoming
12    dementia-capable;
13        (7) working with the Department's Behavioral Risk
14    Factor Surveillance System Coordinator and the Alzheimer's
15    Disease Advisory Committee in identifying available funds
16    to execute appropriate modules for critical data
17    collection and research, if and when necessary; moneys
18    appropriated to the Alzheimer's Disease Research, Care,
19    and Support Fund may be considered;
20        (8) building and maintaining effective working
21    relationships with other departments and organizations to
22    ensure coordination between and the support of dementia
23    services;
24        (9) maintaining and applying knowledge of current
25    developments and trends in the assigned area of expertise
26    by reading appropriate journals, books, and other



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1    professional literature, and attending related
2    conferences, seminars, and trainings;
3        (10) providing support for the Alzheimer's Disease
4    Advisory Committee's activities, including co-drafting the
5    State plan; and
6        (11) compiling and publishing an annual report on the
7    state of dementia care in Illinois, including, but not
8    limited to, the status of Illinois in becoming a
9    dementia-capable state.
10    (410 ILCS 410/3.2 new)
11    Sec. 3.2. Use of moneys in the Fund. Moneys in the
12Alzheimer's Disease Research, Care, and Support Fund shall be
13used by the Department of Public Health to cover costs
14associated with this Act, including, but not limited to, the
16        (1) salary and benefits for the full-time position of
17    Dementia Coordinator within the Department; and
18        (2) other expenses contingent with the
19    responsibilities of the Dementia Coordinator, including,
20    but not limited to, travel and professional development
21    opportunities.
22    (410 ILCS 410/3.3 new)
23    Sec. 3.3. Administrative support. The Department of Public
24Health shall be responsible for providing the Dementia



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1Coordinator with work space, supplies, and other
2administrative office materials, as needed, through existing
3resources and not with moneys from the Alzheimer's Disease
4Research, Care, and Support Fund.
5    (410 ILCS 410/4 rep.)
6    Section 20. The Alzheimer's Disease Research Act is amended
7by repealing Section 4.".