Full Text of SB1726 101st General Assembly
SB1726sam002 101ST GENERAL ASSEMBLY | Sen. Suzy Glowiak Filed: 4/2/2019
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| 1 | | AMENDMENT TO SENATE BILL 1726
| 2 | | AMENDMENT NO. ______. Amend Senate Bill 1726, AS AMENDED, | 3 | | by replacing everything after the enacting clause with the | 4 | | following:
| 5 | | "Section 5. The State Finance Act is amended by changing | 6 | | Section 5.180 as follows:
| 7 | | (30 ILCS 105/5.180) (from Ch. 127, par. 141.180)
| 8 | | Sec. 5.180. The Alzheimer's Disease Support Research Fund. | 9 | | (Source: P.A. 84-1308.)
| 10 | | Section 10. The Alzheimer's Disease Assistance Act is | 11 | | amended by changing Section 6 and by adding Section 8 as | 12 | | follows:
| 13 | | (410 ILCS 405/6) (from Ch. 111 1/2, par. 6956)
| 14 | | Sec. 6. Alzheimer's Disease ADA Advisory Committee. |
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| 1 | | (a) There is created the Alzheimer's
Disease Advisory | 2 | | Committee consisting of 23 voting members appointed by the
| 3 | | Director of the Department, as well as 5 nonvoting members as | 4 | | hereinafter
provided in this Section. The Director or his | 5 | | designee shall serve as one
of the 23 voting members and as
the | 6 | | Chairman of the Committee. Those appointed as voting members | 7 | | shall
include persons who are experienced in
research and the | 8 | | delivery of services to individuals with Alzheimer's disease or | 9 | | a related disorder and their families.
Such members shall | 10 | | include : | 11 | | (1) one individual from a statewide association | 12 | | dedicated to Alzheimer's care, support, and research; | 13 | | (2) one individual from a non-governmental statewide | 14 | | organization that advocates for seniors; | 15 | | (3) the Dementia Coordinator of the Illinois | 16 | | Department of Public Health, or the Dementia Coordinator's | 17 | | designee; | 18 | | (4) one individual representing the Community Care | 19 | | Program's Home and Community Services Division; | 20 | | (5) one individual representing the Adult Protective | 21 | | Services Unit; | 22 | | (6) 3 individuals from Alzheimer's Disease Assistance | 23 | | Centers; | 24 | | (7) one individual from a statewide association | 25 | | representing an adult day service organization; | 26 | | (8) one individual from a statewide association |
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| 1 | | representing home care providers; | 2 | | (9) one individual from a statewide trade organization | 3 | | representing the interests of physicians licensed to | 4 | | practice medicine in all of its branches in Illinois; | 5 | | (10) one individual representing long-term care | 6 | | facilities licensed under the Nursing Home Care Act, an | 7 | | assisted living establishment licensed under the Assisted | 8 | | Living and Shared Housing Act, or supportive living | 9 | | facilities; | 10 | | (11) one individual from a statewide association | 11 | | representing the interests of social workers; | 12 | | (12) one individual representing Area Agencies on | 13 | | Aging; | 14 | | (13) the Medicaid Director of the Department of | 15 | | Healthcare and Family Services, or the Medicaid Director's | 16 | | designee; | 17 | | (14) one individual from a statewide association | 18 | | representing health education and promotion and public | 19 | | health advocacy; | 20 | | (15) one individual with medical or academic | 21 | | experience with early onset Alzheimer's disease or related | 22 | | disorders; | 23 | | (16) one individual representing a statewide | 24 | | association of registered nurses; | 25 | | (17) one individual who is an active member of a | 26 | | police, fire, or emergency response department; |
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| 1 | | (18) 3 individuals who are family members or | 2 | | representatives of individuals with Alzheimer's disease or | 3 | | related disorders; and | 4 | | (19) one individual from a licensed hospital. 3 | 5 | | physicians licensed to practice medicine in all of
its | 6 | | branches, one
representative of a licensed hospital, one | 7 | | registered nurse with a specialty in geriatric or dementia | 8 | | care, one
representative of a long term care facility under | 9 | | the Nursing Home Care
Act, one representative of a long | 10 | | term care facility under the Assisted Living and Shared | 11 | | Housing Act, one representative from a supportive living | 12 | | facility specially serving individuals with dementia, one | 13 | | representative of a home care agency serving individuals | 14 | | with dementia, one representative of a hospice with a | 15 | | specialty in palliative care for dementia, one | 16 | | representative of an area
agency on aging as defined by | 17 | | Section 3.07 of the Illinois Act on the
Aging, one | 18 | | representative from a leading advocacy organization | 19 | | serving individuals with Alzheimer's disease, one licensed | 20 | | social worker, one representative of law enforcement, 2 | 21 | | individuals with early-stage Alzheimer's disease, 3 family | 22 | | members or representatives of individuals with Alzheimer's
| 23 | | disease and related disorders, and 3 members of the general | 24 | | public. Among
the physician appointments shall be persons | 25 | | with specialties in the fields
of neurology, family | 26 | | medicine, psychiatry and pharmacology. Among the
general |
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| 1 | | public members, at least 2 appointments shall include | 2 | | persons 65
years of age or older.
| 3 | | (b) In addition to the 23 voting members, the Directors of | 4 | | the following
State agencies or their designees who are | 5 | | qualified to represent each Department's programs and services | 6 | | for those with Alzheimer's disease or related disorders shall | 7 | | serve as nonvoting members:
Department on Aging, Department
of | 8 | | Healthcare and Family Services, Department of Public Health, | 9 | | Department of Human Services, and Guardianship and Advocacy | 10 | | Commission.
| 11 | | Each voting member appointed by the
Director of Public | 12 | | Health shall serve for a term of 2 years, and until his
| 13 | | successor is appointed and qualified. Members of the Committee | 14 | | shall not
be compensated but shall be reimbursed for expenses | 15 | | actually incurred in
the performance of their duties. No more | 16 | | than 12 voting members may be of
the same political party. | 17 | | Vacancies shall be filled in the same manner as
original | 18 | | appointments.
| 19 | | The Committee shall review all State programs and services | 20 | | provided by State agencies that are directed toward persons | 21 | | with Alzheimer's disease and related dementias, and by | 22 | | consensus recommend changes to improve the State's response to | 23 | | this serious health problem. Such recommendations shall be | 24 | | included in the State plan described in this Act. | 25 | | (Source: P.A. 97-768, eff. 1-1-13.)
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| 1 | | (410 ILCS 405/8 new) | 2 | | Sec. 8. Alzheimer's Disease Support Fund; support. The | 3 | | Department, in coordination with the members of the Alzheimer's | 4 | | Disease Advisory Committee, shall make reasonable efforts to | 5 | | promote the Alzheimer's Disease Support Fund during relevant | 6 | | times, including, but not limited to, periods of time when tax | 7 | | returns are typically received. Ways to promote the Fund | 8 | | include, but are not limited to, issuing press releases and | 9 | | posting on social media. | 10 | | Section 15. The Alzheimer's Disease Research Act is amended | 11 | | by changing Sections 1, 2, 3, and by adding Sections 3.1, 3.2 | 12 | | and 3.3 as follows:
| 13 | | (410 ILCS 410/1) (from Ch. 111 1/2, par. 6901)
| 14 | | Sec. 1. Short title. This Act shall be known and may be | 15 | | cited as the Alzheimer's Disease Support Research Act.
| 16 | | (Source: P.A. 84-324.)
| 17 | | (410 ILCS 410/2) (from Ch. 111 1/2, par. 6902)
| 18 | | Sec. 2. Contributions on tax returns. Each individual | 19 | | taxpayer required to file a return pursuant to the
Illinois | 20 | | Income Tax Act desiring to contribute to the Alzheimer's | 21 | | Disease Support Research
Fund may do so by stating the amount | 22 | | of such contribution (not less than
$1) on such return. This | 23 | | Section shall not apply to an amended return.
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| 1 | | (Source: P.A. 86-678 .)
| 2 | | (410 ILCS 410/3) (from Ch. 111 1/2, par. 6903)
| 3 | | Sec. 3. Alzheimer's Disease Support Fund. | 4 | | (a) There is created the Alzheimer's Disease Support | 5 | | Research Fund, a
special fund in the State Treasury.
| 6 | | (b) The Department of Public Health shall deposit any | 7 | | donations
received under for the grant program created pursuant | 8 | | to this Act in the
Alzheimer's Disease Support Research Fund.
| 9 | | (c) The General Assembly may appropriate moneys monies in | 10 | | the Alzheimer's
Disease Support Research Fund to the Department | 11 | | of Public Health for the purpose of complying with the | 12 | | requirements under Section 3.1 of awarding
grants pursuant to | 13 | | this Act.
| 14 | | (Source: P.A. 84-1265.)
| 15 | | (410 ILCS 410/3.1 new) | 16 | | Sec. 3.1. Dementia Coordinator. | 17 | | (a) On or before October 1, 2020, the full-time position of | 18 | | Dementia Coordinator shall be created within the Department of | 19 | | Public Health. The Dementia Coordinator shall be funded out of | 20 | | the Alzheimer's Disease Support Fund. The Dementia Coordinator | 21 | | is responsible only for activities associated with and relevant | 22 | | to the successful implementation of the State of Illinois | 23 | | Alzheimer's Disease State Plan, including, but not limited to: | 24 | | (1) coordinating quality dementia services in the |
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| 1 | | State to ensure dementia capability; | 2 | | (2) using dementia-related data to coordinate with the | 3 | | Department to improve public health outcomes; | 4 | | (3) increasing awareness and creating | 5 | | dementia-specific training; | 6 | | (4) providing access to quality coordinated care for | 7 | | individuals with dementia in the most integrated setting | 8 | | available; | 9 | | (5) establishing and maintaining relationships with | 10 | | other agencies and organizations within the State in order | 11 | | to meet the needs of the affected population and prevent | 12 | | duplication of services; | 13 | | (6) identifying and managing grants to assist in the | 14 | | funding of the position of Dementia Coordinator and other | 15 | | programs and services to assist Illinois in becoming | 16 | | dementia-capable; | 17 | | (7) working with the Department's Behavioral Risk | 18 | | Factor Surveillance System Coordinator and the Alzheimer's | 19 | | Disease Advisory Committee in identifying available funds | 20 | | to execute appropriate modules for critical data | 21 | | collection and research, if and when necessary; moneys | 22 | | appropriated to the Alzheimer's Disease Support Fund may be | 23 | | considered; | 24 | | (8) building and maintaining effective working | 25 | | relationships with other departments and organizations to | 26 | | ensure coordination between and the support of dementia |
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| 1 | | services; | 2 | | (9) maintaining and applying knowledge of current | 3 | | developments and trends in the assigned area of expertise | 4 | | by reading appropriate journals, books, and other | 5 | | professional literature, and attending related | 6 | | conferences, seminars, and trainings; | 7 | | (10) providing support for the Alzheimer's Disease | 8 | | Advisory Committee's activities, including co-drafting the | 9 | | State plan; and | 10 | | (11) compiling and publishing an annual report on the | 11 | | state of dementia care in Illinois, including, but not | 12 | | limited to, the status of Illinois in becoming a | 13 | | dementia-capable state. | 14 | | (410 ILCS 410/3.2 new) | 15 | | Sec. 3.2. Use of moneys in the Fund. Moneys in the | 16 | | Alzheimer's Disease Support Fund shall be used by the | 17 | | Department of Public Health to cover costs associated with this | 18 | | Act, including, but not limited to, the following: | 19 | | (1) salary and benefits for the full-time position of | 20 | | Dementia Coordinator within the Department; | 21 | | (2) other expenses contingent with the | 22 | | responsibilities of the Dementia Coordinator, including, | 23 | | but not limited to, travel and professional development | 24 | | opportunities; | 25 | | (3) the purchase of modules for the Department's |
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| 1 | | Behavioral Risk Factor Surveillance System; and | 2 | | (4) support for public outreach and training efforts | 3 | | under this Act. | 4 | | (410 ILCS 410/3.3 new) | 5 | | Sec. 3.3. Administrative support. The Department of Public | 6 | | Health shall be responsible for providing the Dementia | 7 | | Coordinator with work space, supplies, and other | 8 | | administrative office materials, as needed, through existing | 9 | | resources and not with moneys from the Alzheimer's Disease | 10 | | Support Fund.
| 11 | | (410 ILCS 410/4 rep.) | 12 | | Section 20. The Alzheimer's Disease Research Act is amended | 13 | | by repealing Section 4.".
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